Organisation

Debra Ireland

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2025

Impact Report and Financial Statements — Year Ended 31 March 2025

Run to 40 campaign with Colin Farrell and Emma Fogarty at the Dublin Marathon (October 2024) raised over €1 million for Debra — the largest single fundraising campaign in the charity's history; 300 people in Ireland supported who are living with EB; income figures in Euro currency (Irish registered charity CHY 8703 / RCN 20021726)
Key Metric 1
90 home visits to families in 2024 (up from 67); 381 family support phone calls; 87 advocacy calls with external bodies; 34 advocacy meetings; 79 emergency medical alert cards issued; 17 new people living with EB connected with family support service
Key Metric 2
100% of family support service users rated it as exceptional or very good; 98% said they have access to all the information they need; 100% said they have access to the service when they need it; 112 counselling sessions funded; 20 driving lessons funded for two people; government committed to ring-fence funding for home care packages for people living with severe EB
Key Metric 3
Government commitment secured to ring-fence funding for home care packages for people with severe EB — a major advocacy win; Run to 40 campaign raised €1 million; 100% of family support users rated service exceptional or very good; EB reached front pages of Irish national newspapers for the first time; 17 new families connected with support service