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Epilepsy Society

Annual Report 2024/2025

Epilepsy Society is the UK's leading epilepsy charity, founded in 1892, delivering world-leading research, specialist medical services, residential care and advocacy. In 2024/25 the charity completed 1,872 MRI scans, processed 20,322 Therapeutic Drug Monitoring samples, published 89 academic papers and supported 5,696 helpline contacts. All seven of its care services were rated 'good' by the CQC, and its researchers made significant advances in genomic diagnosis and the link between climate change and seizures.

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About

World-leading genomic research into epilepsy causes and drug resistance; specialist diagnostic and medical services at the Chalfont Centre; residential care for approximately 100 people with complex needs; confidential helpline and webchat; advocacy and parliamentary engagement; awareness training for organisations Custom geography from upload: UK

Key Metrics

Key Metric 1 1,872 MRI scans completed and 20,322 Therapeutic Drug Monitoring samples processed at the Chalfont Centre
Key Metric 2 89 academic papers published by researchers in conjunction with UCL, advancing genomic and clinical epilepsy science
Key Metric 3 5,696 helpline contacts made via calls, emails and webchat, with 3,169 information resources sent out

Key Outcomes

  • All 7 care services rated 'good' by the Care Quality Commission; nearly 5,000 whole genome sequences analysed cumulatively to advance personalised treatment
  • 87 awareness-raising training courses delivered to over 600 delegates, improving epilepsy knowledge across organisations and healthcare settings
  • Parliamentary reception and week-long House of Commons exhibition secured Government attention, with Prime Minister referencing epilepsy twice during PMQs in National Epilepsy Week

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