Muscular Dystrophy UK Impact Report 2023/24
2,752 people contacted helpline; 470 people received cost-of-living grants; 43 active research projects; 11 new grants worth £1.3 million awarded; £9.5 million total income — 16% increase on previous year
Key Metric 1
152 people supported through advocacy service; 24 Neuromuscular Centres of Excellence or Pursuing Excellence Awards; 10 NHS treatment appraisal processes participated in; 507 enrolments on e-learning modules; 465 attendees across six health professional upskilling webinars
Key Metric 2
80% of neuromuscular care advisor and clinical nurse specialist workforce attended Care Advisor Conference; 324 Changing Places toilets registered; for every £1 spent on fundraising, £3.70 raised; 68p in every £1 spent on charitable activities
Key Metric 3
SMA added to NHS newborn screening 'in-service evaluation' following MDUK co-secretariat work with UK SMA Newborn Screening Alliance; two treatment appraisals resulted in NHS approval; RHS Chelsea Flower Show garden secured to raise awareness with new audiences